Tuesday, March 24, 2009

That Shocking Feeling

It's baaaaaaaccccckkkkk...... :(
I've been having painful things, fatigue and what not for the past couple of weeks. I had also started noticing, just a little - very slight, the electric shock feeling when I bend my neck forward. This weekend I just started noticing it more. It's not the feeling I had when I got diagnosed. That one would radiate down my left side, into my arm and fingers and down my leg to my toes.
This time it's more isolated to my back and when I'm sitting it moves from there to the top of my right thigh.
I've also had this horrid sharp burning pain that goes from the shoulder area up to the base of my head on the left side of my neck. And I feel it through my arms in places too. Like I will feel that feeling in a very, very dull form starting in my arms and shoulders and then it will go away. Then out of the blue I'll have that burning pain and it does me in. I feel exhausted after it. And sad.

I am very sad right now. I want this to go away. I want MS to go away. I hate MS.

I'm back on Neurontin in a progressive way so the fatigue side effect doesn't just lay me flat - not that the current fatigue isn't doing that already. The nurse wants me to try for 9 days to see how it goes. So in 9 days this will be over? In 9 days I'll have an idea if this was just a pain thing or a relapse? What's the difference between plaque on the spine and a lesion? :( I should know this by now.
I just am trying to get through today really. I need to. It's not been a good day at all. Well, or yesterday. Just really sad. This stuff always makes me really very sad.

I hope everyone else is a thousand times better than I am right now!
Please take care.


Stuart said...

From: MS Views and News, Inc.

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nico blue said...

I get the L'hermitte's symptom when I bend my neck too. Not a nice feeling. I hope you're feeling better!

maggie.danhakl@healthline.com said...


Healthline just published this infographic outlining Multiple Sclerosis statistics and numbers in a visual guide. You can see the graphic here: http://www.healthline.com/health/multiple-sclerosis/facts-statistics-infographic

Our users found this info very useful as it showcases MS diagnosis rates (200 new cases a week!) and demographics that are most at risk, and I thought it would be a great resource for your page: http://lookingforwardwithms.blogspot.com/2009/03/that-shocking-feeling.html

Please take a look at the guide and consider adding it to your page. The graphic is also embeddable, so you can embed just the images if you choose to do so.

Thanks again and let me know if you have any questions.

Maggie Danhakl • Assistant Marketing Manager
p: 415-281-3124 f: 415-281-3199

Healthline • The Power of Intelligent Health
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