Wednesday, March 17, 2010

Please Be Responsible in Comments

I'm really getting sick of people posting comments about so called "Miracle Cures" to Mulitple Sclerosis. It's great that things have worked for you, but it's irresponsible to tell people to stop taking their medications because of political reasons or whatever else. It's irresponsible to not have clinical proof to back up your comments.

What works for you doesn't work for everyone else and it can be dangerous to tell people to stop taking their medications.

I appreciate all other comments, but please be responsible. People seek help or other view points to what is going on with them. This blog is to help me share my experiences. I happen to be on an injectible and other meds that I don't always take.
I hope I help others.

Please understand that I don't wish to keep comments trying to sound factual where there is no proof.

I hope all my readers are doing well. Please take care!

Wednesday, March 10, 2010

Sensory Relapse

I went to my Neurologist on Tuesday and she agrees that I'm still having symptoms from a Sensory Relapse.
We agreed that the Neurontin (Gabapentin) isn't doing it for me, so she wrote me a script for a new medicine. I'm sorry, I don't remember the name of it right now. carbomazapine or something like that. I'm anxious to get started on it, but I was out all day and didn't get a chance to get it filled yet.

I have been out at clients all day today so that was good. Felt good to be able to be out. Also, it's a beautiful day! I hope it's this nice tomorrow too.

I'll update on how the new meds work. I see my neurologist again in May, so hopefully these 6 weeks of my MS winter is almost over!

I hope you're all well. Please take care!

Sunday, March 07, 2010

Life Changes but MS Stays the same so far :(

I still have the numbness in my hands. My left foot did the thing today where I couldn't move my toes, until I picked up my leg and put it on the floor. My feet still hurt. My stomach has been so uncooperative. But I'm trying to stay so active.

The weather was beautiful today. I got out for a walk with my daughter and the dog.
I really can't wait to feel like myself again. So much is going on... life is really hard right now, having MS is such an inconvenience.

I feel so exhausted right now and I want to sleep so much - but I don't have time.

I hope you're all well.
Take care!