Monday, January 11, 2010

Worst Exacerbation EVER! :(

I am in the middle of battling the worst exacerbation I've ever experienced. I hurt everywhere. I can't make a fist with my right hand at all - the pain is unbareable. I can barely get up and down the stairs - it hurts so much.

Last week I started getting a "cold" or something. Apparently a viral infection. I called my Primary Care Physician on Tuesday morning and told her how stiff I was, the pain down my right arm was getting worse, I had a headache that got worse when I moved my eyes. She was concerned that is was "Viral Mengingitis" and told me to go to the ER. So I did. I hurt so much then - but not nearly like I do now.

The ER doc said my CT scan came back fine and all the lovely plethera of blood that they took came back good. He diagnosed me with Viral Syndrome and Multiple Sclerosis. WOW!! I have Multiple Sclerosis?!?!?! Who would have thought!

So I tried to rest, I went about my week and though I was doing better except for the wretched pain still in my right arm. The numbness that hurt.

Then Saturday I went to Costco alone and then Target and I was kind of sore, but didn't think anything of it. Then yesterday I went for a two hour massage! I was so happy to go because I woke up with a "crick in my neck" and it hurt to turn my head to the right. She worked out knots in my shoulder blades and said I would be sore. I've done this so many times before, I know the routine.

I came home, took a bath (a hot bath - I'm so dumb!), then got out and my left wrist hurt, then my neck felt worse, my ankles were hurting, like I had shin splints lower down my legs, right above the feet. I thought, well, it's from pushing that cart and walking around Costco. That could do anyone in who had a little cold.

(By the way - my right hand is numb and painful as I type - I getting used to it - but certainly don't want to - it really, really, really, really sucks!)

By the time I got to bed last night I was in pain everywhere. Ever joint in my body hurt. I woke up that way - only worse. The horrible part was that my 9 year old little baby had to help me get out of bed and down the stairs. :(

She's too little to have to deal with this. To help her mom get out of bed, walk down stairs, go to the bathroom :(.

I called my neurologists office all day and left messages and then the MS Nurse called me back and said, "You've got a virus and getting double-whammies!" She reminded me that Viral infections give you the aches and pains, particularly in the joints, and MS can sometimes cause joint pain... badaboom, badabing! Then she reminded me that when I run fevers, which makes the MS worse, I get another badaboom, badabing!

I told her how I was walking like a 95 year old. I asked if it could be anything else - she said - fight the virus, take care of the pain - it will pass.

I'm hitting the Aleve and Neurontin now - and I'll be diligent.

I can't walk up and down my stairs. I can't get up from my chair or sit down to pee without it hurting my knees to bend, my back to hurt, my hips to ache. I can't open a bottle of water, turn a doorknob, wash my hands without feeling pain in every joint in my hands. Particularly my thumbs. :(

I feel like a horrible mom. :( My kids look scared and my daughter is an Angel who keeps helping me. But she's so young :( she shouldn't have to take care of her mommy. :(
I really, really, really, really hate MS. :(

But I soooo hope none of you have to go through this. I hope you're all doing well.
Please take care.

1 comment:

Mabel said...

I really know what you're feeling. I know you are angry... and sad. I hope all this happens soon... really. Mabel.